There are a number of advocacy organizations and internet sites that are
excellent sources of information about spinal cord injury care, treatment,
support, and research:
National Multiple Sclerosis Society (www.nmss.org) Through its network of chapters
nationwide, the Society promotes research, educates, advocates on critical
issues, and organizes a wide range of programs, including support for those who
are newly diagnosed and those living with MS.
The Myelin Project (www.myelin.org) The Myelin Project aims to
accelerate research on myelin repair. The Myelin Project created a framework in
which researchers can cooperate effectively by giving scientists adequate,
prompt financing and by continuously interacting with them. The funds are put
toward clinically oriented experiments on the cutting edge of remyelination
research.
Consortium of Multiple Sclerosis Centers (CMSC) (www.mscare.org) The CMSC's mission is to
stimulate and facilitate research in the field of multiple sclerosis to develop
vehicles to share information and knowledge among CMSC members and the
healthcare community for the benefit of those affected by MS, and to develop and
implement mechanisms to influence healthcare delivery.
The Multiple Sclerosis Foundation (www.msfacts.org) The Multiple Sclerosis
Foundation is a service-based, nonprofit organization, whose primary mission is
to ensure the best quality of life for those coping with MS by providing
comprehensive support and educational programs.
The Multiple Sclerosis Society of Canada
(http://www.mssociety.ca)
The MS Society of Canada funds research into the
cause and cure of MS. The Society provides information,
funding, and support to all Canadians affected by
MS.
WeMove
(www.wemove.org)
The WE MOVE™ Web site is a comprehensive on-line
resource for movement disorder information and movement
disorder activities on the Web. You can subscribe
to a free on-line newsletter through their site
that updates you on the latest research information
on movement disorders
Myelin Repair Foundation
(www.myelinrepair.org)
The Myelin Repair Foundation’s mission is
to develop rational drug targets to slow, stop and
ultimately repair damage to myelin caused by MS.
The research is focused on understanding how the
body produces myelin, how MS disrupts this process,
and how to restore the body’s natural ability
to repair myelin.
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