When you’re looking for information or support about conditions of the nervous system, there are many advocacy organizations and websites that can provide you with information about MS and other neurological conditions, treatment, and research. Here are a few:
American Parkinson Disease Association
The American Parkinson Disease Association provides information on support groups, treatment options, and health-care facilities across the United States.
The Bachmann-Strauss Dystonia & Parkinson’s Foundation
The Bachmann-Strauss Dystonia & Parkinson’s Foundation works to encourage new research and scientists in the fields of dystonia and Parkinson’s disease, and to heighten awareness about these movement disorders.
Davis Phinney Foundation
The Davis Phinney Foundation provides essential information, practical tools and inspiration to people living with Parkinson’s and funds research closely aligned with our mission – improving the lives of people living with Parkinson’s. It is possible to live well with Parkinson’s today.
The Michael J. Fox Foundation
The Michael J. Fox Foundation is dedicated to finding a cure for Parkinson’s disease through an aggressively funded research agenda and to ensuring the development of improved therapies for those living with Parkinson’s today. Their team works to accelerate breakthroughs patients can feel in their everyday lives. In 2016, the Parkinson’s Action Network (PAN) joined the Michael J. Fox Foundation.
The Parkinson’s Foundation
The Parkinson’s Foundation makes life better for people with Parkinson’s disease by improving care and advancing research toward a cure. They build on the energy, experience and passion of the global Parkinson’s community. The Parkinson’s Foundation was formed by the merger of the National Parkinson Foundation (NPF) and the Parkinson’s Disease Foundation (PDF).
The Parkinson’s Alliance
The Parkinson’s Alliance raises funds, largely through partnerships and matching fund affiliations, for research into the causes of and potential cures for Parkinson’s disease. Their signature event, the Parkinson’s Unity Walk, takes place in New York, NY each Spring and attracts more than 11,000 participants.
PD Movement Lab
The PD Movement Lab was started by Pamela Quinn in 2006 as a place where people with Parkinson’s (PwP) could rediscover a sense of purpose post-diagnosis and learn new approaches to the many day-to-day physical challenges they face. Blending her background in dance training, along with her 20-plus years’ experience living with Parkinson’s, Quinn invents tools that allow PwPs to rediscover mobility and greater physical freedom.
Veteran’s Affairs Parkinson’s Disease Research, Education, and Clinical Centers
The Parkinson’s Disease Research, Education, and Clinical Centers are designed to serve the estimated 80,000 veterans affected by PD through state-of-the-art clinical care, education, research, and national outreach and advocacy. These centers are located in Philadelphia, Richmond, Houston, West Los Angeles, San Francisco, and Portland/Seattle.
Can Do MS
Can Do MS, formerly The Heuga Center for Multiple Sclerosis, is an innovative provider of lifestyle empowerment programs for people with MS and their support partners. A national nonprofit organization, Can Do MS empowers people to move beyond their MS by giving them the knowledge, skills, tools and confidence to adopt healthy lifestyle behaviors, actively co-manage their disease and live their best lives.
College Students with MS: A Guide to Campus Resources & Support
This on-line resource guide is for people with MS who are looking to earn a college degree. It provides resources to help students better navigate campuses and classrooms, understand their legal rights and how to seek help should someone without MS start to develop symptoms while in college.
Consortium of Multiple Sclerosis Centers (CMSC)
The CMSC’s mission is to stimulate and facilitate research in the field of multiple sclerosis, to develop vehicles to share information and knowledge among CMSC members and the healthcare community for the benefit of those affected by MS, and to develop and implement mechanisms to influence healthcare delivery.
HealthCare Journey’s vision is to be the most respected, valued, and used Virtual Multiple Sclerosis Center for all patients, caregivers, HCPs, and payors; providing the highest quality information and services to best manage diseases/conditions and symptoms.
MS Views & News
MS Views and News (MSVN), is dedicated to the global collection and distribution of information concerning Multiple Sclerosis (MS). Through partnering relationships, MSVN provides education, advocacy and service to empower and enhance the quality of life of the MS community.
MS World is a patients helping patients organization committed to helping people connect with the community via knowledge and peer support. They strive to provide a safe and comfortable environment offering the latest information and referrals.
Multiple Sclerosis Association of America
MSAA is a national nonprofit organization whose mission is to enrich the quality of life for everyone affected by MS. MSAA provides ongoing support and direct services to these individuals with MS and the people close to them. MSAA also serves to promote greater understanding of the needs and challenges of those who face physical obstacles.
The Multiple Sclerosis Foundation
The Multiple Sclerosis Foundation is a service-based, nonprofit organization whose primary mission is to ensure the best quality of life for those coping with MS by providing comprehensive support and educational programs.
National Multiple Sclerosis Society
Through its network of chapters nationwide, the Society promotes research, educates, advocates on critical issues, and organizes a wide range of programs, including support for those who are newly diagnosed and those living with MS.
The Christopher & Dana Reeve Foundation
The Christopher & Dana Reeve Foundation is dedicated to curing spinal cord injury by funding innovative research, and improving the quality of life for people living with paralysis through grants, information and advocacy.
Acorda supports the Reeve Foundation microsite that provides information for the newly injured, their loved ones, and caregivers. This targeted website supplements the breadth of resources available through the Reeve Foundation’s Paralysis Resource Center and their team of Information Specialists and volunteer Peer Mentors.
The Caregiver Action Network is the nation’s leading family caregiver organization working to improve the quality of life for more than 65 million Americans who care for loved ones with chronic conditions, disabilities and disease. This non-profit organization provides education, peer support, and resources to family of caregivers across the country.
The Myelin Project
The Myelin Project aims to accelerate research on myelin repair. The Myelin Project created a framework in which researchers can cooperate effectively by giving scientists adequate, prompt financing and by continuously interacting with them. The funds are put toward clinically oriented experiments on the cutting edge of remyelination research.
National Disability Institute
A non-profit corporation focuses on solutions that produce tangible impact for individuals, families, communities, states and government. Their mission is to build a better economic future for Americans with disabilities.
National Organization for Rare Disorders
The National Organization for Rare Disorders (NORD) is a unique federation of voluntary health organizations dedicated to helping people with rare “orphan” diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
NeuroTalk is an online resource for people with neurological and brain disorders to find support.