Finding Support for People Living with Parkinson’s

Living with Parkinson’s can be challenging. It’s important to stay connected and to find a supportive network where you can learn about the disease and stay engaged with the community.

Parkinson’s support groups

Friends and family members are a great start. It can also be valuable to join a support group where you can learn practical information about Parkinson's and connect with others who are living with Parkinson’s.
To learn about support groups in your community, speak with your doctor or contact the National Parkinson Foundation or the American Parkinson Disease Association for lists of local support groups across the country.

Your care team

It’s also important to develop a care team that consists of healthcare professionals who can help you get the care you need depending on your individual symptoms. Members of your care team could include:

• A movement disorder specialist or a neurologist who specializes in treating people with Parkinson’s
• General Neurologist
• Primary Care Physician
• Physician's Assistant
• Nurse or Nurse Practitioner
• Social Worker
• Physical Therapist
• Occupational Therapist
• Speech-language Pathologist
• Pharmacist
• Neuropsychologist
• Psychiatrist or Psychologist
• Nutritionist or Dietician

It is important to know that you are not alone.

There are approximately one million Americans living with Parkinson’s; it is estimated that 350,000 experience OFF periods.

OFF periods occur anytime Parkinson's symptoms return.

Looking for more support? Join The Many Faces of OFF community.

If you would like to know more about living with Parkinson’s, join The Many Faces of OFF Facebook community. You will find stories from other people living with Parkinson’s, plus tips and connections to events, support, and much more.
Join Here